Privacy Policy

SPIN-Dementia Network Plus Privacy Policy

Effective Date: 4th November 2024.

The SPIN-Dementia Network Plus (SPIN-D) values your privacy and is committed to protecting the personal data of participants, network members, and website users. This Privacy Policy explains how we collect, use, and store your personal data in compliance with the General Data Protection Regulation (GDPR) and other relevant data protection laws.

1. Who We Are

SPIN-Dementia Network Plus is a research network dedicated to fostering collaboration and advancing knowledge in dementia prevention. SPIN-D is coordinated by the University of Exeter and University College London with support from ESRC, NIHR and Alzheimer’s Society.

2. What Information Do We Collect?

We may collect personal data from you in various ways, including when you complete surveys, register for events, or sign up for communications from us. The data we collect may include:

Contact Information: Your name, email address, phone number, and organisational affiliation.
Professional Information: Job title, career stage, and research focus.
Engagement Data: Information related to your participation in SPIN-D activities, event attendance, and interactions within our digital platforms.
Images and Recordings: Photographs, video, or audio recordings taken at SPIN-D events (where consented to).
Technical Data: IP address collected through cookies and similar technologies.

3. How Do We Use Your Data?

We use your data for purposes directly related to our research network activities, including:

Network Activities: To organise and manage your participation in SPIN-D events, webinars, and collaborative initiatives.
Communications: To provide you with updates on SPIN-D activities, relevant research opportunities, and partner events, where there is a legitimate interest to do so.
Service Improvement: To analyse engagement metrics, improve user experience, and personalise content for members.

We will not use your data for marketing purposes unless you have explicitly opted in.

4. Data Sharing and Disclosure

Your data may be shared in the following instances:

SPIN-D Partners and Affiliates: We may share relevant information with trusted collaborators and project partners when necessary to facilitate SPIN-D activities.
Service Providers: Third-party providers who assist with digital platform management, analytics, or other operational needs, bound by data protection agreements.

We will never sell your data or disclose it to unaffiliated third parties without your consent, except when required by law.

5. Media Consent for Events

We may photograph or film events to capture the activities of our network. When possible, we will inform attendees at registration and during the event. If you do not wish to be photographed or filmed, please let us know. In some cases, we may ask for written media consent if you are the main subject of a photograph or recording, and you can withdraw this consent at any time.

6. Product Purchases and Payments

If you purchase an event ticket or other products through our website, we will collect and process your personal details to fulfill your order. All payments are securely processed by a third-party payment provider. SPIN-D does not store or process your credit card information directly.

7. Cookies and Website Analytics

Our website uses cookies and similar technologies to enhance your browsing experience and gather insights on website use:

Essential Cookies: Necessary for website functionality.
Analytics Cookies: Help us understand website usage patterns and improve content.
Third-Party Cookies: Occasionally used when embedding functionality from other trusted websites.

You can adjust your browser settings to delete or block cookies. Continued use of our website implies consent to our cookie usage.

8. Your Rights and Choices

You have the right to:

Access: Request a copy of your data held by SPIN-D.
Correction: Ask us to correct inaccurate or incomplete information.
Deletion: Request the deletion of your data, where appropriate.
Restriction: Limit certain processing activities.
Objection: Object to specific uses of your data.
Data Portability: Receive a copy of your data in a commonly used format.

To exercise these rights, please contact us at spindnetworkplus@live.ucl.ac.uk.

9. Data Security and Retention

We store your data on secure servers managed by the University of Exeter and University College London. We take appropriate technical and organisational measures to protect your data against unauthorised access, loss, or misuse.

Your data will be retained only as long as necessary to fulfill the purposes outlined in this policy or as required by law. Once it is no longer needed, we will securely delete or anonymise it.

10. Policy Updates

We may update this Privacy Policy periodically to reflect legal requirements or changes in our practices. Significant updates will be communicated through our website or via direct communication.