August has been typical in things being a little quieter at work as many people enjoy a break, and untypical in the continual sunshine throughout England!
As we haven’t had many submissions from the Core Lived Experience Group (CLEG) members this month, I thought I’d share one of the activities I’ve been involved in over the summer.
SPIN-D is fortunate to have a wonderfully diverse CLEG. During recruitment, we worked hard to bring together people from different locations, ages, genders and ethnic backgrounds, while ensuring a balance of people living with dementia and carers.
However, diversity goes far beyond these characteristics and earlier this year, Rachael Litherland from Innovations in Dementia facilitated a discussion about diversity at a CLEG meeting. This led to a working group of members and Rachael exploring how we could better understand the range of experiences, backgrounds and perspectives within the group.
“A diagnosis or a caring role doesn’t erase our talents. By identifying the skills we bring to the table, we can organise our work so everyone can contribute more meaningfully” Note from CLEG working group.
The group agreed five diversity questions that could be put to the CLEG members, and I agreed to meet individually with all members over the summer to record their responses
These conversations have been a genuine privilege. Members shared stories about their lives, careers, interests, achievements and aspirations, reminding me that while dementia may be part of someone’s story, it is only one part. I came away with an even greater appreciation of the experience, qualities, skills and perspectives each member brings to SPIN-D.
The information gathered will be shared within the CLEG to strengthen connections and help members get to know each other better. Any decisions about taking this work further will be made by members at our next meeting in September.
Debra Gingell, Public Involvement Co-ordinator.
spindementianet.org 